Reading is hard with this illness. If you have the cognitive energy for video and not for text, start here — the mechanism walkthrough covers the core of the argument.
I cover environmental triggers for ME/CFS, fibromyalgia, MCS, Long COVID and EDS — the role of VOCs and nanoparticles like titanium dioxide, and what patients can do about exposure in their own homes.
The argument
15:39
I've Lived Outdoors 24/7 for a Year — Here's What My ME/CFS Taught Me About Environment
My full presentation to the Renegade Research "Patients to Researchers" roundtable, on a year of living outdoors 24/7 because extreme environmental avoidance is the only thing that keeps my ME/CFS from getting worse.
32:53
Environmental Contributions to ME/CFS & Long COVID Presentation
My research perspective on environmental factors as the root cause of ME/CFS and Long COVID, even for those with viral-initiated illness.
2:19:38
Scientist Shares Research Findings! Unveils Novel Mechanism for Chronic Illness: CFS/FM/POTS/MCS/LC
The full 2h19m deep dive. My complete research findings and the novel mechanism behind chronic fatigue syndrome, fibromyalgia, MCAS, EDS, POTS and more.
Practical
33:17
How To Find Environmentally Safe Housing
An instructional guide to finding housing with good air quality, with real examples of what to look for and what to avoid.
7:09
Recommendations for Chemical-Conscious Personal Products!
My recommendations for switching to chemically-conscious products in your home.
26:03
Episode 46: Finding Environmentally Safe Housing with Scott Daniska
A conversation on The Chemical Sensitivity Podcast about one of the greatest challenges people with MCS face — finding environmentally safe housing.
Context and advocacy
36:46
Left Behind: The Terrifying Reality of America's Failed Healthcare System
How the American healthcare system fails people living with chronic illnesses such as ME/CFS, fibromyalgia and multiple chemical sensitivity.
4:10
Hear my response to the NIH at their Virtual Webinar on Clinical Research Engagement
My public comment to the NIH's webinar on how to improve researcher engagement with patients.
19:41
A Long COVID Remission Story That May Surprise You
An interview with Ben, a person with Long COVID from Kosovo, whose condition improved once he considered how his environment might be driving his symptoms.
1:54:38
Research in ME/CFS & Long COVID - X Space Recording
Audio from the X Space I hosted on research in ME/CFS and Long COVID, joined by Geoff Pain, PhD; Sam Keating; Michael Scoma, MD; and Jordan Vaughn, MD.
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